Aging & Dementia
Below are resources recommended by the AADMD.
The ‘NTG’ is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease.
FRAME is a web-based educational library and resource created by Positive Exposure that changes how medical information is presented to health care professionals in training, clinicians, families and communities.
AADMD worked with FRAME to produce a short video, “Early Onset Alzheimer’s Disease in Adults Living with Down syndrome.”
Alzheimer's Disease in People With Down Syndrome
National Institute on Aging (NIA), one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. NIA is the primary Federal agency supporting and conducting Alzheimer's disease research.
NIA has many resources on Alzheimer's Disease in People With Down Syndrome.
Alzheimer's Biomarkers Consortium — Down Syndrome (ABC-DS)
National Institute on Aging (NIA), one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. NIA is the primary Federal agency supporting and conducting Alzheimer's disease research.
NIA has an Alzheimer's Biomarkers Consortium — Down Syndrome (ABC-DS)
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Cerebral Palsy and Dementia | NTG
Articles
Smith K, Peterson M, Victor C, Ryan J. INCIDENCE OF DEMENTIA IN ADULTS WITH CEREBRAL PALSY: A UK COHORT STUDY. Innov Aging. 2018;2(Suppl 1):980. Published 2018 Nov 16. doi:10.1093/geroni/igy031.3628
Engelborghs S. Adults with cerebral palsy and Alzheimer disease: a missing link? Dev Med Child Neurol. 2022 Mar;64(3):284. doi: 10.1111/dmcn.15080. Epub 2021 Oct 10. PMID: 34632577.
Mahmoudi E, Lin P, Kamdar N, Gonzales G, Norcott A, Peterson MD. Risk of early- and late-onset Alzheimer disease and related dementia in adults with cerebral palsy. Dev Med Child Neurol. 2022 Mar;64(3):372-378. doi: 10.1111/dmcn.15044. Epub 2021 Sep 8. PMID: 34496036.
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The search for a link between autism and neurodegenerative conditions | Spectrum News
Articles
Fyfe I. Early-onset dementia in autism spectrum disorder. Nat Rev Neurol. 2021 Oct;17(10):595. doi: 10.1038/s41582-021-00564-y. PMID: 34475570.
Vivanti G, Tao S, Lyall K, Robins DL, Shea LL. The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder. Autism Res. 2021 Oct;14(10):2189-2199. doi: 10.1002/aur.2590. Epub 2021 Aug 11. PMID: 34378867; PMCID: PMC8487995.